Showing posts with label Atlanta. Show all posts
Showing posts with label Atlanta. Show all posts

Sunday, December 4, 2011

My recent surgery...

The day before surgery - 30 seconds
short of new PR - 1:58:08
Atlanta Half Marathon (7th time)
Hey! Okay, so I thought I'd write a little post on here about my recent surgery... I am back at school and doing well, but still recovering - hence the fact that I am not allowed to run yet.  Anyway, back in 2009, we found out that I had a "lesion" (nice word for "STINKIN' NF TUMOR!!!") along my femoral nerve, in my upper right thigh.

I had been told by coaches that I "favored" one leg over the other, which is common enough to not create any concern- it just means that you strike and push off a tad stronger with one leg.  Other than that, the first symptom in Spring of 2009 when I told the sports trainer that I couldn't feel my kneecap, which created concern- knowing I have NF2, and so I was told to get an x-ray of my knee.  They sent me home and told me that I was fine, but I knew there was a problem.  As the months went by, that area of numbness continued to spread to much larger areas of my leg- up my thigh and down my shin.  I was scheduled to have surgery to remove the now "enhancing lesion" as they called it after my 2nd MRI of the thigh.  About a month before that operation that was scheduled for September 2010, but then after I had done the pre-op testing, it was CANCELED, because they wanted me to get more tests done!  I had to get an EMG to measure the electrical activity of various muscles in my leg, by sticking little needles into the leg muscles. If you are wondering, I think the pin they stuck in my shin muscle was the most painful of them all!

My entire right leg seemed to be getting weaker, particularilly the quad!  When I tried to do the leg extension machine the gym, I could struggle to do 10 pounds or 15 pounds at best, on my right leg, but it felt like about the same effort level to do the same thing with 50 or 60 pounds on my left leg.  I could even see the difference the the size of the leg muscles- IRON on left and JELLO on right! Despite all of that, I continued running, although my stride altered but my body learned to compensate for the uneven strength... my right glutious-maximus (rear) became stronger than my left side glute.

I'd run my first half-marathon (13.1 miles) back in 2003, and had run a best time of 2:01, but usually ran times in the 2:03 - 2:10 range for a half-marathon run on roads, and all of this time just dying to break that 2-hour mark.  A few months after getting diagoses of having this tumor in my leg, I ran the Atlanta Half-Marathon 2009, for the 5th time, plus i've run other halfs as well, and I FINALLY did it... 4 minutes off... I ran 1:57:38 and you know what? I felt like I was on top of the world!  took off those shoes and had terrible blisters but PAIN IS TEMPORARY! (I've also done five full marathons.)

As of June 2010 MRI, the "enhancing lesion" measured approxtimately 5.3 x 3.6 x 1.9 cm.

And after that, I just kept on running... sometimes I told people that I had a tumor in my leg, but usually they didn't believe me, since I'm always running and biking all over the place.  My boyfriend and I did some winter road races, in sub-zero temperatures, and then an open snowshoe championships race.  He decided to do a triathlon when I had gone home for a week, and the next year we both did it, and he preposed to me at the finish line!!!! <3  ...then we both did Syracuse 70.3 IRONMAN!  (and I'm not supposed to be able to swim in open waters or to ride a bike due to lack of balance nerves... and I still had the leg weakness caused by that darn NF tumor!)

Steve kept telling me over and over that pretty soon I won't be able to use the tumor as an excuse for going slow, because when I recover  and the nerve heals, if will get stronger! ... I LOVE HIM!!!

In October, I went to Boston for doctor's appointments, pre-op, met ups with a girl with NF1, Jen, and also participated in many hours of a medical research study about vestibular balance. A week after that, I ran my first ever 50k... yes, that is 31 miles! 

So, the surgery? It FINALLY happened! November 25, 2011, 9 days ago... and yes, the day after running my 7th Atlanta 1/2 Marathon, and barely missed a P.R. time by only 30 seconds, and finished in 1:58:08... I've only made sub-2-hours twice ever, this one and the other I mentioned above.  After the race i cleaned up, and packed up the car, and my parents and I flew off to Boston, where I would have surgery the next day!  We had celebrated our big Thanksgiving family dinner, the prior Sunday, with my grandmother, but we still had Thanksgiving dinner left-overs for the actual day. 

My surgery was at 8am and I woke around 11:15am, I think- well that is first time I noticed the clock. The surgery went very well and my doctor said that the tumor came out relatively easily with nothing apparent left behind.  I was originally told no running for 1 month, but later was told "2 weeks, if its not painful"!

I got discharged the following day and then on Sunday, at 7am, my Mr. Prince Charming came and picked me up and whisped me away, and drove me all the way back to Rochester.... Did I already say how wonderful he is or what?! NO, YOU CAN'T HAVE HIM!

I returned for my follow-up appointment 3 days ago, and he said that it looks like it is healing very well.  When I casually mentioned to the doctor that I had gone to pilates class 3 days post-op he just said "hah, I knew you would!" My mom was there for my follow-up and we met up with Jen also and got lunch. I started Physical Therapy on Friday, one week after surgery.

I will be up and running, very soon! 
I should get back to studying now!

Monday, November 21, 2011

The class is over (and I got an A!!!) ...BUT, this project continues!

This is a post that I wrote a few years ago, about this blog project. It began to die off but I think it has a lot of potential to keep it going. Please read on and consider contributing your story, artwork, poems, or other works...
____________________________________________

Hey, I just wanted to let everybody know that the class for which I began this project has ended, and I really appreciate all of the wonderful contributions that people have submitted, BUT... I am continuing this project and hope to continue getting some contributions of more people's stories... stories of overcoming adversity, ups and downs, surgeries, medical trials, running for research to cure NF, and more!  

Tell your story here, please! To get access to post here, please message me or send me an e-mail at anne.s.noble@gmail.com to tell me your name and your e-mail address, and I will send you an invite to gain permission to post in this blog.  The reason that I am continuing this project is because I really like what I have so far, and my professor even said that he thinks it could have potential to become a book. (If you would NOT want to be included in this future book idea, that I hope to become a reality, you MUST let me know.  I will respect all privacy rights but for publishing purposes, I think that the screen names MIGHT need to be switched to real names, but I am not sure, yet.) 

2011... __________________________________________________________________________

ALSO, I recently switch the automatic view on the blog to be "Dynamic Views" - Please let me know if this setting is causing you trouble or technical difficulties.  I'm just getting used to it myself, and kind of considering switching back to one of the older views.  If you prefer this, please let me know!

I am home for the week, and really missing my fiance, Steve!!! <3

I am having surgery in a few days for the NF2 tumor that is on my right femoral nerve in my upper thigh, so I would appreciate if you pray for me, if you do that sort of thing. The hopes of myself and my doctors is that the muscle in that area will be able to regain some strength after surgery. Thank you! God Bless!  My surgery will be at 8am in Boston, on Nov. 25th. (of course the day after running a half marathon!)

Wednesday, November 2, 2011

Daddy said it was a space shuttle...


Been there done that
at least once per year
since I was seven
Dad first told me
it was a space shuttle
I got excited-
A ride to the moon

Mommy drove me 
to visit the shuttle
clouds and animals-
tucans, tigers, monkeys-
covered walls and ceilings.
There it was in a room,
the big space shuttle.

I kept coming back
every single year-
used to put me to sleep
They pricked my hand
I used to cry, cry, cry
It used to have stickers
Lion King stickers, inside

It is just plain white, now.
I am older and I know
it is not a space shuttle
They still prick my hand
I learned to lay still
It's really hard to not-
wiggle, wiggle, wiggle

I still come back
every single year
It used to be very loud
but now the tube is silent.
I used to get a toy-
Now I just get a CD,
and schedule another.







Thursday, October 13, 2011

This Girl...

This Girl...
So there I was, at the end of my second quarter of college, about to go on spring break with Campus Crusade for Christ (Now known as Cru) Spring quarter registration had come and gone, and I had signed up for a class in American Sign Language, (ASL) because of the large deaf population on campus.

I go to meet up with the group, to leave for the airport, and I see everyone else has two carry-on bags, while I only have one. It had been a bit since I flew. So I asked the first person I saw who seemed outgoing, if we could have two, and she said yes, then proceeded to show me how to properly compress them by jumping on them. I went and grabbed another bag.
By the time I got back, we were just leaving for the airport. I wanted to thank this girl for telling me that, but it seemed like she didn't hear me. One of the other students going on the trip got her attention, and I noticed a small flesh-coloured piece of plastic behind one of her ears. This was odd, because she spoke well for someone wearing an implant. I didn't think much of it at the time.
We got to the airport early, and went through security without any problems. As we were supposed to, we had arrived early, so someone broke out a deck of cards and we started to play. That's when I noticed that this girl really was hard of hearing. Except, apparently, to me. She seemed to understand me just fine, while she'd struggle with other people.

We played cards for the hour or so before our flight, then boarded the plane, and due to our flight schedule, I didn't see this girl again until we landed in Florida. We were waiting for some checked baggage at the carousel, and this girl saw the sign that said "Don't climb on the carousel. " She promptly went and climbed on and pretended to be getting eaten by the baggage gate. She hopped off just before the baggage started to come out, and then we went to our separate cars for the three-hour journey to the hotel.
It was close to 1 or 2am by the time we got there, so we all checked in and went right to bed. The next morning, the whole group met up to go to the morning session, and this girl was there. I started talking to the interpreters, one of whom was my roommate for the week, and told them that I was going to be starting an ASL course in the spring. This girl was following the conversation and immediately offered to help me learn sign, something she had only done recently. I accepted.
As the week progressed, I started hanging out with this girl more and more. I found out that she was late-deafened at the age of 19 (Which I thought was weird because she couldn't be more than 18.) due to some genetic disorder called "neu-ro-fi-bro-ma-to-sis, typetwo." (Which I would learn more about later) This kinda struck me because I had only just celebrated my 19th birthday, and tried to think of how my life would be different without sound. I found out later that week that she was actually 21.

Thursday night, there was a speaker who gave a really good message on being a warrior for God. He talked about how we had to completely surrender everything to Him in order for us to fulfill our calling. I did, and that included my then-girlfriend, and my major in college. After the session, I was looking around at all the audio and video stuff that was going on, and thought, "Boy, I think I could do something with this if I switch to telecommunications engineering technology. I don't really like all the coding I have to do for computer anyway."

We came back after a week in Panama City Beach, and I had really formed a relationship with this girl. While there were two interpreters on the trip, there were also several deaf students who used ASL as their primary communication. This girl wanted to use voice, and practice hearing with her "super-ear." She could also understand my voice very well, for reasons I didn't know at that point. So instead of an interpreter, I spent the whole week with her repeating things that needed to be said or just talking, while she'd teach me signs and fingerspelling.
I also found out in those first few weeks that this girl had a weird obsession with this thing called "running." I had participated in indoor track in high school, but I was a shot-putter. My running was minimal. In soccer, I played goalie. In lacrosse, I sat the bench. My sport was swimming, and I had lost it my senior year of high school to chlorine-induced asthma. I thought maybe someday I'd do a triathlon, because I could still open-water swim just fine, and I rode my bike everywhere. It was just that third part, that "running" that confused me.
During the spring quarter, this girl took me to No Voice Zone, where I continued to learn and practice ASL. Through that, I found out about a weekend event between RIT and Galladuet, and a party that was hosted at the end of it. I went, and made some chainmail bracelets, because I was bored. I met this one guy there who was quite interested in the chainmail, and bought a few of the ones I had.

Shortly after, spring quarter ended, and the summer started. This girl drove all the way to Colorado by herself, and posted lots of pictures on facebook, of which I was very jealous. During the summer break, I ended up breaking up with my then-girlfriend, because I knew I had to, since God had told me to 3 months prior. A month and a half later, she was nearly killed in a car accident and through that we became close friends and remain so to this day.
While that was happening, this girl that I had met on spring break was still in Colorado, and I was working at a camp in Rome, NY, as a lifeguard. The rest of the summer flew by, and before I knew it I was back in school in September. When I got back, this girl invited me to go to running club with her. What's running club? I mean, do people actually enjoy running together? Apparently they did, and soon I was racing nearly every weekend at some 5k or other race. My first race was a XC fundraising run at a local high school. I won my age group by default, I think. This girl, and another one of our friends from running club, also did.

As fall quarter progressed, I started learning more about this "NF2" and all the problems it had caused for this girl, and I found out about this endurance-racing team that supports research that she was on. I learned about what the tumors can do to someone, I learned a little bit about what it's like to live with, and I learned that no matter what life throws at you, it's always your choice to stay beaten down, or get back up.

One day, I encountered the guy who had been so interested in the chainmail while at a deaf event with this girl. The next day, this girl and I were part of a 6-pack of Coor's Light that ran a 5k for Halloween. After I got back that night, I got a text from the guy I had met saying he thought it was so cute to see me with my girlfriend. I thought it was funny, since we weren't "officially" "dating" at that point, so I texted this girl. Shortly after I sent that text, I had a relationship request on facebook, which I guess technically makes it "official."

Throughout fall and into winter, I found out that this girl really loved to do marathons and distance running. Again, I found it weird, since I equate distance running with pain and suffering. (Still do, actually.) But before I knew it, I was running races during the winter. And the races were getting longer, first 4 miles, then 5, and then somehow on my 20th birthday, this girl suckered me into running 8 miles.

It was now spring break of my second year at school. This time, I went to visit her parents down in Atlanta, and ended up doing a 17-mile trail run all over a mountain on that break. Again, I'm not sure how that happened. All I know is I sprained my ankle.

We were only able to stay half of break week in Atlanta, so we came back to NY to visit my parents. And got into a minor car accident on the way home. That's a great way to have your girlfriend meet your parents: "Hi mom and dad, this girl is coming to visit and we got into an accident." No injuries, though. Just a fair bit of damage to my van. Not three days later, we decided to go for a snowshoe run at a local park and found ourselves at the open event for snowshoe nationals. We ran it, and rather enjoyed it, since it was a completely different experience to winter road racing.
Spring quarter came and went, a few more races here and there, I almost got pulled into running a half marathon on Long Island, but I managed to avoid that somehow. This girl and I decided to work at the same camp that summer, I would teach hockey, she would teach arts and crafts.
But a few weeks before we were to start that job, this girl decided to fall out of her bed and wind up in the hospital for 4 days during finals week. I was there as much as I could be, and I made her food and made sure she felt OK. It was at this point that her mother said to me "You're acting like a married couple right now." And I realized that was true, and I started praying about that idea.

After the bed stunt, we went to work at the camp. That had it's ups and downs, but for the most part, we enjoyed it. We had the same days and evenings off, and spent most of our free time together. After that summer, I decided to try doing an olympic distance triathlon on my mountain bike, since I was now able to run 10k at once. I chose an inaugural event at the same lake where I had worked the previous summer, while this girl was in Colorado.
I immediately got hooked on triathlons, for some reason that still escapes me. I then found out about a half-ironman in Syracuse that went, almost literally, right by my house. I said I wanted to do it next year. This girl said she'd do it too, even though she had no balance nerves, had a large tumor in her leg, wasn't supposed to open-water swim, and wasn't supposed to be able to ride a bike. I said "fine, whatever," half thinking that she wouldn't do it.
During that winter, I kinda fell out of the running that I had been involved in the previous year. I had started curling more actively, and most of my tournaments conflicted with winter races. This girl kept doing subzero winter races, despite growing up in Atlanta, Georgia. This spring break, she went back home, and I visited my grandmother in Florida.
Spring of my third year. (2011) I got a co-op back home for spring and summer, while this girl, who changed her major from interior design to multidisciplinary studies, took a few classes. During the co-op, one night while I was out of town in a motel, I called this girl's dad and asked for his blessing, as I was planning on proposing to her relatively soon.
Every weekend for two quarters, either she would come and visit me in Syracuse, or I would drive to Rochester to visit her. One of these weekends, I drove to Rochester and we did a trail marathon, even though I had told her I'd never do one. Another weekend, I drove to Rochester and we were going to do our first triathlon together. However, the swim got canceled, so it was a duathlon. Her real first triathlon would be the next weekend.
July 31st, 2011. It was 5 am, when we woke up to go to the same triathlon I had done a year before. It was at a lake where I had spent part of my summer every year for my whole life. It was the lake where I worked as a lifeguard for 6 years. It was the lake where I had done my first triathlon in 2010. It was the lake where she would do her first triathlon in 2011. My little sister came to watch and take pictures of us "racing."
I finished the tri in two hours, 38 minutes. My sister had been holding a small wooden box the whole time. In it was a ring. A ring meant for this girl. 26 minutes after I finished, I saw her running toward the finish line. I stood in the finish area with my hands behind my back. When she crossed the line, I gave her a hug, and said: "I have something to ask you..." To which she replied "You're supposed to be on one knee!" So I dropped to one knee, pulled out the ring box, and asked her if she'd marry me.
She said yes.
And then this girl told me that I was supposed to put the ring on her finger. I did. A few minutes later, the race director announced our finish-line engagement. We made (almost) all the compulsory phone calls, to share with our family, and then posted it on facebook.
Since it was the end of the summer, I was done with my co-op, she was almost done with her classes, I went for a little road trip to New Hampshire to visit some friends and family while she went back home to show her new hardware to her family. During my visit to NH, I did my first half-ironman triathlon, and enjoyed it immensely, other than the fact that I felt sick for the whole run.
A month later, this girl and I did our first race as an engaged couple. It was a half ironman. In Syracuse. My second, her first. We both finished, with both our families cheering us on. It was a wonderful feeling.

This girl is Anne Shigley. No, you can't have her, no matter how awesome you think she is after reading this. Anne's going to be mine (and God's) until one of us dies. How did I get so lucky? Anne, I love you. I never would have been able to race an Ironman without you nagging me to run, I never would have done a trail marathon, or a triathlon. We've had our ups and downs, but I'm always amazed by your drive and motivation, and that's one of the reasons I love you. I never would have become as proficient at ASL as I am if you hadn't shown me NVZ. And I may very well have ended up just another computer-game playing, single, nerdy, RIT student if it wasn't for you. NF sucks. It's cost you a lot that you valued. But if it wasn't for NF, I wouldn't have met you. I would have a different outlook on life.  And I love you just the way you are.  You're beautiful, loving, and compassionate, if a bit stubborn at times. (Although the tumors can go take a hike, I don't like them.) How does a southern-runner girl get engaged to an "eskimo-hockey-playing-canadian-boy?" I'll never know, but what I do know is that it's a match made in heaven. <3



Monday, October 3, 2011

My daughter, my hero

Our baby girl was perfect, simply perfect.
The first clues of NF2 were subtle. She was a little late to talk inteligibly and required some speech therapy, but it was no big deal. When she started taking ballet with her friends at three, motivated mainly by the pink tutu, the first task was to hop on one foot. When she couldn’t do that, she practiced alone in her room for a week until she came out gleefully hopping on one foot for laps around the house. Looking back, I realize there was an NF2 tumor already working on her.
Me and my daughter, my hero
Me looking on as Destin guards Anne - '87
After her 4th marathon- NYC '10
            When she entered first grade we had a parent conference about the termination of speech therapy as she no longer needed it. The counselor said something about her having done fine on a hearing screening test. My mind went back to the times I would call home from business trips. Sometimes when I talked with her we had a good daddy-daughter conversation, but sometimes it was like cross questions and crooked answers, as if she didn’t hear m
e. I said, “just a minute, let’s talk about that.” To follow up we scheduled a hearing test with an audiologist who at long last determined she was faking out the test, giving appropriate responses for the “bad” ear when she felt a vibration through the bone. This led to an MRI.
            In the early nineties, I carried a pager rather than a cell phone. I remember where I was when I got the page, and the pay phone I used to call my wife, and the window I was looking out when we got the news that our perfect child had “neurofibromatosis type 2,” something I had never heard of.
            Over the next week, I did what I do. I researched. Somehow I found Dr. MacCollin at Harvard and talked with her by phone. She told me there is wisdom in “watchful waiting,” and to always seek second and third opinions before any surgery. She said that the worst outcomes she saw were when doctors who knew litte about NF  saw a tumor and felt that had to immediately cut it out right away. So we watched and waited.
            It was nearly two years later, on a Saturday morning in the middle of the Atlanta Olympics. We had tickets for some of the events, though none of the really “hot tickets.” My little girl, a Brownie looking forward to third grade, came down to Saturday our family pancake breakfast with one side of her face distorted. At first I thought she was just goofing around. After a few minutes we realized that the tumor the doctors had been watching was affecting a facial motor nerve. On Monday morning I was on the phone to Dr. MacCollin at Harvard. She gave me a short list of surgeons who had enough familiarity with NF2 to consider, and I started calling. Someone from South America cancelled a scheduled surgery at House Ear Institute and within two weeks we were on a plane to see Dr. Brackman in Los Angeles.
            In scheduling surgery I had a long talk with a nurse at House Ear. I asked her what to expect. She told me as kindly as she could of the sad outcomes they too often saw with NF2 patients. I recall laying across the bed, a hardened middle aged man, crying my heart out for my little girl, then pulling it together to put up a cheerful front for her. She later admitted that she was afraid she was going to die. So was her little brother who went to stay with cousins.  
            In LA, the doctors told us that they expected it would be necessary to sever her facial motor nerve, and that she would never smile again on that side of her face. Maybe in a few years she could hold her mouth straight. That night before surgery we prayed. I got on the phone with cousins across the country and we prayed together. In the morning, before surgery, I got a container of salad oil from the cafeteria and followed the directions in James 5. All through the day I prayed.
            When she woke up in ICU, she was grinning from ear to ear and asking for a hot dog. The other ICU patients had unbearable nausea and couldn’t bear the thought of hot dogs.
            The next decade was often an ordeal. She returned to her elementary school bloated by steroids with hair combed over the shaved side of her head. Mean kids ostracized her and friends didn’t know how to come to her aid. We kept seeking the best advice and moved her from one school to another seeking the best fit. By 7th and 8th grades she was at a very small school for kids with learning differences, where she began to thrive. However, she insisted on going to a “regular high school.” She chose a visual arts magnet program at a high school a few miles from home. At freshman orientation our chubby little girl asked what were the no-cut sports, and signed up for cross country, swim team and track. After driving her to the first morning of cross country practice at 6:30 AM, I sat in the car and watched as she struggled to run half a lap. Little did I suspect that she would become a marathoner and triathlete.
            The summer before her senior year, her doctor said the tumors on her spinal cord and in her “good” ear had grown. It was time to get something done about them. He thought she could get past her senior season in cross country first. During the fall it appeared that her gait was thrown off by the spinal cord tumors. She ran several meets with stress fractures in both tibias and both fibulas before she finally had to stop. (At the end of the season she received a special award for courage.) In October we flew to Boston where Dr. MacCollin told her that someday she would become deaf though probably not right away. My little girls said, “yeah, maybe when I’m 80,” but had trouble hearing us talking to her at the art museum afterward. She wept silently on the flight home. Her hearing grew fuzzier over the next few weeks.
            The day we flew back to Boston for surgery on her spinal cord tumors, her hearing blinked out. We were reduced, for the first time, to communicating by writing on a whiteboard. While Dr. Coumans was skillfully removing spinal cord tumors we were on the phone to House Ear Institute scheduling surgery to decompress the tumor pressing on the auditory nerve of what had been her “good” ear. As soon as she  was released to travel we flew directly to LA. At that point she had 4% speech recognition. Decompression surgery was attempted right before Christmas. We would have Christmas in the hospital, so we flew her brother in from Atlanta and I bought a tacky metal Christmas tree for her hospital room. She got a staph infection in her back that scared us and the doctors to death.  We remained in LA until after New Year’s Day and for the first time sought out theaters with captioned movies.
            My daughter returned for her last semester of high school using a captionist in the one remaining academic course required for graduation and began taking ASL at a community college in the afternoons. She insisted on running before it was permitted, rebelled at restrictions on driving until we could get her checked out by a hospital program that clears people to drive after medical situations, and within a few weeks drove herself to a meeting of the Association of Late Deafened Adults. Her college choice quickly narrowed to Maryville in Tennessee, which has a deaf studies program and a spot for her on the cross country team. She began networking with other young folks with NF2 through the new technology of Facebook, and never slowed down.
            The following fall, she had to be at Maryville for a cross country team meeting at the end of the day of my mom’s 80th birthday luncheon. I had just gotten up to talk to the assembled family and friends when my little deafened girl came up, gave me a hug and a kiss, and walked out to drive away to college. That was the second time I cried.
            Through her freshman year of college, communication with doctors did not stop. We were advised that she could not wait til summer for surgery to remove the tumor in what had been her “good” ear and install an ABI, as there was severe risk of facial paralysis if she waited. During her spring break we visited RIT / NTID in Rochester, then she ran her first full marathon in Atlanta with a crew of girls from her dorm at Maryville turning up to cheer her on. Then we all flew to LA again for yet another operation, taking along our high school senior son and his then-girlfriend to spend their spring break exploring LA together. Little did we know that he would wind up spending several years in the LA area.
            Some people who lose hearing at 18 crawl into a hole, but she never slowed down. As soon as her ABI was turned on, she went to DC for the summer for a crash course in ASL at Gallaudet, going for long runs all over the nation’s capital, and then transferred to RIT/NTID at Rochester. She never really moved back home after that. The next summer she worked at Blue Ridge YMCA Assembly in NC, the following summer at YMCA of the Rockies in Colorado, then at a camp in Pennsylvania, followed by a summer in school at Rochester. She never slowed down in her running, completing several marathons. On a Campus Crusade for Christ spring break trip, she connected with a great guy who was supposed to interpret for the deaf girl. He said she didn’t need help but they had fun. He proposed at the finish line of her first triathlon this summer, and a couple of months later they completed a Half Ironman Triathlon together. (How can anyone ride 56 miles on a bike with no balance nerves?) Drilling daily on speech recognition with her ABI, she now has over 90% speech recognition without seeing the speaker using the ABI alone, and we can have telephone conversations again.
            My little girl who taught herself to hop on one foot despite lack of balance when she was three, and who drove herself to the Association of Late Deafened Adults when she was a newly deaf high school senior, has no “quit” in her.
She is my hero.
           

Sunday, October 2, 2011

NF never sleeps......

NF Endurance - Atlanta 13.1 - 2011
NF never sleeps.......


NF never sleeps so when 3:00am came along on our 12th wedding anniversary it was time to hit the pavement. We went out to Atlanta 13.1 to set up our hydration station to go spread some NF awareness.

So if NF never sleeps......... neither will we.